Woman describes her scleroderma symptoms

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She also runs a non-profit organisation, which is currently applying to become a registered charity, called ASAL Autoimune Support Awareness which provides awareness of the condition and supports people with it.

Ms Shirazi said that she is always keen to barter favors with people, such as a poster about the condition in exchange for her services.

She quipped that around the time of her diagnosis, when she was told she had six months to live, she asked “where’s the nearest surf and turf restaurant”.

But after a rousing conversation with a specialist who she said told her “this disease cannot control your mind” and that “if you control it, you win”, she changed her mentality about giving up.

Before the pandemic, Shirazi was receiving lidocaine infusion but hasn’t had it since due to long waiting times. Lidocaine is used to calm the nerves and reduce pain for people with chronic pain, MS and systemic scleroderma, and is used by dentists as a local anaesthetic.

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